Organ donor helps people across Canada launch campaigns to find living donors of their own

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An Ottawa woman who anonymously donated part of her liver to save a child 7 years ago is now helping desperate people across Canada launch campaigns to find the living organ donors they need to survive.

“I know first-hand that public appeals work,” says Heather Badenoch, who has been helping manage private and public appeals in search of kidney and liver donors for 6 years. “There are a lot of kind people in the world willing to help another person in need. So when I hear of someone who needs a living donor and they need help to find one, the transplant Bat-Signal goes up, and I call as soon as I can.”

The latest CIHI data shows that while in 2023, organ transplants in Canada exceeded volumes not seen since the onset of the COVID-19 pandemic, there is still a significant gap between people needing organs and those who receive them either from deceased or living donors. In total, 3,369 solid organ transplants were performed in Canada in 2023; 82% of the organs transplanted came from deceased donors and 18% from living donors. There were more than 3,427 Canadians on a wait-list for organ donation as of December 31, 2023, and more than 681 people died or were withdrawn from the list in 2023.

Transplant doctors often recommend that people in need of liver and kidney transplants find living donors. Only a portion of the liver is donated, and what’s taken grows back fully. The body typically has 2 kidneys and needs only 1 to function.

Some of those in need of an organ have a large network of family and friends and a regular presence on social media. For them, a little information on the living donor application process and how to approach the people in their lives might be all they need. The University Health Network, home to one of the busiest transplant centres in North America, regularly offers free Finding a Living Donor sessions in-person and online through its Centre for Living Organ Donation.

But for others, Badenoch is often there to give advice and offer more hands-on help.

Some people may be inexperienced when it comes to sharing their story with friends and family or more publicly on social media. Maybe English isn’t their first language. There may be cultural reasons why they are uncomfortable asking for help. Maybe the person is just too sick to manage a campaign.

For them, Badenoch offers words of encouragement on the phone or by video. She creates a customized campaign based on their comfort level sharing their story. She helps them shape what they want to say and offers advice on how to get those messages shared as widely as possible.

“Public appeals work — there are a lot of kind people in the world”

Badenoch began volunteering in this capacity in October 2019, just a year after she donated 22% of her liver to a child she didn’t know and has still never met. It was a life-saving gift that she says was also life-changing for her.

“Being a part of saving someone’s life is easily one of the most joyful things I’ve ever done,” she says. “There aren’t enough organs for everyone who needs one. The more I’ve learned about the barriers some people face in finding living donors, the more I want to close that gap.”

In just 6 years, Badenoch has helped launch 33 social media campaigns; 16 people have found a living liver or kidney donor as a result of those public appeals; 5 campaigns are still in progress.

One of those people is Afsana Lallani, who was a nursing student in her early 20s in 2021 and headed for organ failure without a liver transplant. After finding that no one in her family was a match, she started a Facebook campaign with Badenoch’s help that eventually reached almost 61,000 people. Lallani received an anonymous donation and has now also started volunteering to help patients find living donors.

“I think about this life-saving gift I’ve been given and how there are so many people out there who need help to find a donor,” Lallani says. “I want to help them. I was a patient for a long time, and I know what it feels like. I’m here to help.”

People find Badenoch and Lallani because they meet in online transplant support groups. Or sometimes patients tell other patients about the help provided to them.

There is also a Facebook group, Organ transplant recipients and living donors in Canada, that’s filled with other living donors. They share information on what the experience was like to encourage others thinking of donating. They offer words of encouragement to those hoping to find a donor.

“When someone needs help, the transplant community shows up. You are immediately transplant family,” says Badenoch.

About the Canadian Organ Replacement Register (CORR) and the Pan-Canadian Organ Donation and Transplantation (ODT) Data and Performance Reporting System Project

The Canadian Organ Replacement Register (CORR) annual statistics provide information on dialysis and solid organ donation and transplantation. These statistics examine trends in patient characteristics and outcomes in Canada between 2014 and 2023. 

CIHI and Canada Health Infoway are co-leading a multi-year project to develop a modernized pan-Canadian organ donation and transplantation (ODT) data and performance reporting system.

Funded by Health Canada, this project aims to support improvements in ODT access, care and outcomes across Canada through the deployment of technology solutions, system integrations and pan-Canadian data and system-level performance reporting.

How to cite:

Canadian Institute for Health Information. Organ donor helps people across Canada launch campaigns to find living donors of their own. Accessed April 25, 2025.