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Connected care

Connected care jtseng_master

Connected Care offers a future where patients don’t need to repeat their medical history or prescriptions to every health care provider they visit. A future where referrals are sent electronically without patient follow-up. A future where patients and families play a meaningful role in treatment and ongoing care.

The key to this future is information flow. Too often, diagnosis and treatment information cannot follow a patient from a family doctor to a specialist, or from a clinic to a hospital. Accurate, up-to-date information helps health care providers to deliver safe and effective care. Sharing this information should not be the responsibility of the patient or family.

Improving information flow across the health care system is at the heart of Connected Care, and the Canadian Institute for Health Information (CIHI) and Canada Health Infoway (Infoway) play pivotal roles in this effort. Good information flow relies upon 2 conditions:

  • Consistent documentation of patient information across all health care settings, ensuring that patient data is accurate, up to date and accessible wherever care is provided.
  • Robust technical standards and protocols that enable seamless exchange of information between different health care systems, ensuring that data can be sent and received efficiently and securely.

These 2 elements are essential not only in Canada, but also in many countries worldwide where these goals are being actively pursued to improve health care outcomes and patient safety.

Strategic partnerships: CIHI and Infoway

CIHI and Infoway are key organizations leading the advancement of digital health and health information across Canada. In March 2023, Infoway launched the Shared Pan-Canadian Interoperability Roadmap, a blueprint developed with federal, provincial and territorial partners to achieve seamless and secure data exchange in health care.

CIHI's Pan-Canadian Health Data Content Framework is the first building block of the Roadmap and sets the data standards that ensure consistency and accuracy in health information, which are vital for various health system needs. Together, Infoway and CIHI's efforts, including the development of national data and data exchange standards, will support the uninterrupted and accurate exchange of health information across Canada, aligning with Health Canada's vision for a modern, integrated health care system.

We’d love to hear from you

Connected care can only be accomplished by working together. People with lived experience and their families, Indigenous Peoples, clinicians, care providers, technology vendors and industry partners, researchers, provincial and territorial governments, federal departments, pan-Canadian health organizations, international standards and digital health organizations must all have opportunities to influence and drive this work. CIHI is creating a series of consultations, and everyone is invited to provide ideas and feedback. Your voice matters!

Featured material

Canada Health Infoway Shared Pan-Canadian Interoperability Roadmap May 2023

Shared roadmap

The Conference of Deputy Ministers of Health endorsed the Shared Pan-Canadian Interoperability Roadmap, setting a path forward for Canada’s digital health system transformation.

Download the roadmap

Alberta Virtual Care

Interoperability Saves Lives

This report by the Alberta Virtual Care Coordinating Body focuses on a patient-centred health system approach for better patient care and improved health outcomes.

Download the report (PDF)
 

Data Disarray

This report by the Alberta Virtual Care Coordinating Body uncovers the challenges within Canada’s fragmented health data policies and how they hinder the core principles of the Canada Health Act.

Download the report (PDF)
 

Contact us

Get involved 

If you have questions about this initiative, would like to be added to our stakeholder notification list or would like to participate in our consultations, please email us.

connectedcare@cihi.ca

Advancing connected care in Canada

Advancing connected care in Canada cyin_master

CIHI is defining the essential information that should follow a patient from a family doctor to a specialist, or from a clinic to a hospital. By defining that patient information in a standardized way, the information that health care providers need stays accurate and up to date.

Leveraging 3 decades of experience in defining standards for accurate, consistent health information, CIHI is developing the Pan-Canadian Health Data Content Framework that is foundational for Connected Care.

CIHI is collaborating extensively with people with lived experience and their families, Indigenous Peoples, clinicians, care providers, technology vendors and industry partners, researchers, provincial and territorial governments, federal departments, pan-Canadian health organizations such as Canada Health Infoway, international standards and digital health organizations to build the Pan-Canadian Health Data Content Framework and make connected care a reality in Canada.

Benefits

The Pan-Canadian Health Data Content Framework will improve information flow for connected care. Importantly, it will provide a future foundation for pan-Canadian and other interoperability standards to leverage, ensuring seamless and secure data exchange between health care systems. This work will benefit many:

  • Patients will have improved access to and control over their own health information, which will empower them to make informed decisions about their care, will minimize errors and will enhance transitions in care.  
  • Health care providers will benefit from access to timely and comprehensive patient health information, which will reduce administrative burden; improve efficiency, accuracy and care coordination; and enhance confidence in clinical decision-making.
  • Health system decision-makers will be able to harness consistent and standardized data to support evidence-based health system management and planning, which will reduce duplication, optimize care delivery and workflows, and provide greater value for money.
  • Technology vendors and other industry partners will have access to pan-Canadian standards, which will reduce the need to navigate variable requirements across the country, will accelerate time to market, will reduce expenses and will free up resources for innovation.

How we are advancing connected care in Canada

As part of the work and commitments outlined in the Working Together to Improve Health Care for Canadians Plan, Canada is implementing the Shared Pan-Canadian Interoperability Roadmap, developed by Canada Health Infoway in partnership with federal, provincial and territorial partners. This Roadmap serves as a blueprint for enhanced connectivity within Canada’s health care ecosystem, focusing on the seamless exchange of health information across provinces and territories, between health care systems and providers, and most importantly, with patients. As a central building block within the Roadmap, clear and consistent data standards are fundamental to achieving this vision and are helping to ensure that health information is accessible, accurate and secure across the health care continuum.

On June 6, 2024, the Honourable Mark Holland, Minister of Health, introduced Bill C-72, the Connected Care for Canadians Act. The introduction of this former bill builds on the collective health data priorities that we have been advancing in Canada and aims to accelerate the implementation of the Shared Pan-Canadian Interoperability Roadmap, including the adoption of standards and prevention of data blocking through clear, enforceable pan-Canadian requirements.

Contact us

If you have questions about this initiative, would like to be added to our stakeholder notification list or would like to participate in our consultations, please email us.

connectedcare@cihi.ca

Pan-Canadian Health Data Content Framework and CACDI

Pan-Canadian Health Data Content Framework and CACDI jtseng_master

The Pan-Canadian Health Data Content Framework defines and standardizes health information by way of the Data Content Standard and common data architecture. For implementers of the Pan-Canadian Health Data Content Framework, these products define how data should be captured and stored, as well as what data should follow patients from one care setting to another. These products are essential for information and decision-making in clinical care planning, resource management, population health and health system use. 

A subset of the Pan-Canadian Health Data Content Framework is the Canadian Core Data for Interoperability (CACDI). The CACDI works in tandem with Canada Health Infoway’s CA Core+, the pan-Canadian Fast Healthcare Interoperability Resource (FHIR) profiles, to facilitate interoperability and data exchange within the Canadian health care landscape.

The Pan-Canadian Health Data Content Framework and the CACDI are technology-agnostic, which means that they are flexible and can be used with any software solution.

These products have a crucial role in ensuring the seamless exchange of consistent, accurate and interoperable health data from a family doctor to a specialist, or from a clinic to a hospital.

The image illustrates sequencing from the Pan-Canadian Health Data Content Framework to the pan-Canadian interoperability standards led by Canada Health Infoway.

  • A large circle labelled "Pan-Canadian Health Data Content Framework" contains a smaller circle labelled "CACDI."
  • An arrow from the "CACDI" circle points to another circle of the same size labelled "CA Core+."
 

What’s new in this release

Version 1 of the CACDI and the updated Logical Data Model are now available, featuring refined data elements and definitions, and the addition of a terminology foundation section. These enhancements improve clarity, usability and alignment with interoperability standards.

Version 1 of the CACDI focuses on person-centric information:

Person Information

  • Person Identifier Value
  • Person Identifier Type
  • Given Name
  • Middle Name
  • Surname
  • Name Used
  • Birth Date

Allergies and Intolerances

  • Allergy or Intolerance
  • Allergy or Intolerance Reaction

Immunizations 

  • Immunization
  • Immunization Date

Social Determinants of Health (SDOH) 

  • Service Language
  • Indigenous Identity
  • Racialized Group

Medication

  • Medication
  • Medication Dose Value
  • Medication Dose Unit of Measure
  • Medication Route of Administration
  • Medication Timing
  • Medication End Date and Time
  • Medication Reason

Health Concerns

  • Health Concern
  • Health Concern Clinical Status

Uses of the Pan-Canadian Health Data Content Framework and the CACDI

The CACDI provides the foundation for pan-Canadian, interoperable health information exchange across health care systems.

Technology vendors and industry partners will use the Pan-Canadian Health Data Content Framework, CACDI and CA Core+ as their reference for data capture, for data storage, for developing databases and registries, and for data exchange. By adopting or mapping to the common data architecture established by the Pan-Canadian Health Data Content Framework, the CACDI and the CA Core+ FHIR profiles for data exchange, data captured in electronic medical records (EMRs), electronic health records (EHRs) and hospital information systems (HIS) will be accurate and consistent, and will carry the same meaning — that is, such data will be interpreted in the same way by all these systems.  

 

Approach for the development of the Pan-Canadian Health Data Content Framework and the CACDI

A collaborative, multi-pronged and iterative approach is used to develop and consult on the products of the Pan-Canadian Health Data Content Framework. This approach includes

  • Analysis of Canadian and international standards, frameworks, data models and best practices, including the pan-Canadian data exchange standards under development by Canada Health Infoway;
  • Extensive consultation in Canada and abroad, including with people with lived experience and their families, Indigenous Peoples, clinicians, care providers, technology vendors and industry partners, researchers, provincial and territorial governments, federal departments, pan-Canadian health organizations, international standards and digital health organizations; 
  • Co-contributor working groups that focus on the development and refinement of the Pan-Canadian Health Data Content Framework Data Content Standard and Common Data Architecture; and
  • Open reviews that solicit feedback on the draft of the Data Content Standard, CACDI and common data architecture.

Through an iterative development process and with the feedback received, changes are made to products while ensuring alignment across the Data Content Standard and common data architecture. A detailed list of source documents consulted in the development of the Pan-Canadian Health Data Content Framework can be found in its Business Context Model.

Provide your feedback

Get involved 

If you have questions about this initiative, would like to be added to our stakeholder notification list or would like to participate in our consultations, please email us.

connectedcare@cihi.ca

Products of the Pan-Canadian Health Data Content Framework

Products of the Pan-Canadian Health Data Content Framework cyin_master

The Pan-Canadian Health Data Content Framework defines and standardizes health information by way of a Data Content Standard and common data architecture.

The Canadian Core Data for Interoperability (CACDI) is a subset of the Pan-Canadian Health Data Content Framework. It defines a standardized set of essential health data elements and value sets to enable pan-Canadian health information exchange.

What’s new in this release

Version 1 of the CACDI and the updated Logical Data Model are now available, featuring refined data elements and definitions, and the addition of a terminology foundation section. These enhancements improve clarity, usability and alignment with interoperability standards.

How the Pan-Canadian Health Data Content Framework products work together

  • The Business Context Model outlines the overall project's scope.
  • Use cases guide the development of the Information Model, the Conceptual Data Model, and the Logical Data Model. These models are validated by requirements and business rules derived from the use cases.
  • The Data Content Standard defines the data elements and value sets included in the Logical Data Model.
  • The Canadian Core Data for Interoperability (CACDI) is a subset of the Pan-Canadian Health Data Content Framework. The CACDI works in tandem with Canada Health Infoway’s CA Core+ to facilitate interoperability and data exchange.
  • The Metamodel shows how the many products of the Pan-Canadian Health Data Content Framework are structured and relate to one another.
  • The Business Glossary defines the terms used across all products.
  • The Metadata, also known as “the data about data,” is incorporated into each product and describes the characteristics of the data. 

Using a maturity model to demonstrate readiness for implementation

A maturity model is incorporated in products of the Pan-Canadian Health Data Content Framework to document transparency, data-concept completeness, and implementation readiness. The maturity model tracks the evolution of each product.

  • Rating = 0 means “work is in progress”
  • Rating = 1 means “draft created that includes input from experts”
  • Rating = 2 means “has been subject to at least one round of open review”
  • Rating = 3 means “ready for implementation”
     

Detailed product descriptions

Products of the Pan-Canadian Health Data Content Framework are available below. See CIHI’s terms of use for more information about the use of these and other products and services.

Instructions for accessing InfoCentral

Users new to InfoCentral and Infoway must register for an Infoway account to create a username and password. Infoway and InfoCentral will send an email confirming your membership and providing a link to your InfoCentral profile.

Once you have an account, join the Pan-Canadian Health Data Content Framework Community.

Tip: Please keep an eye on your junk folder, as InfoCentral emails may sometimes land there. If you experience any issues, email infocentral@infoway-inforoute.ca.

Data Content Standard

Status: Available: Draft Version 1, September 2024

The Data Content Standard defines essential data elements and value sets necessary for Connected Care. It specifies the types of data to be collected, such as diagnoses, and the languages and formats to be used, such as SNOMED CT codes. This ensures that data is accurate, compatible, uniform and consistent across different systems. Value sets, which are lists of specific values assigned to data elements, ensure standardized and meaningful data exchange, improving data quality and reusability.

Download the Data Content Standard (PDF)

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Canadian Core Data for Interoperability (CACDI)

Status: Final: Version 1, March 2025

A subset of the Pan-Canadian Health Data Content Framework is the Canadian Core Data for Interoperability, which aims to define a standardized set of essential health data elements and associated value sets in the context of a common architecture to support interoperability and data exchange across the Canadian health care ecosystem. The CACDI works in tandem with Canada Health Infoway’s CA Core+ to facilitate interoperability and data exchange within the Canadian health care landscape.

Version 1 of the CACDI and the updated Logical Data Model are now available, featuring refined data elements and definitions, and the addition of a terminology foundation section. These enhancements improve clarity, usability and alignment with interoperability standards.

New Download the Canadian Core Data for Interoperability (CACDI), version 1 (PDF)

New Download the Canadian Core Data for Interoperability (CACDI), Version 1 Logical Data Model (PDF)

View current and previous versions of this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Business Glossary

Status: Available : Draft Version 1, September 2024

The Business Glossary provides terms, definitions, semantic relationships and business rules describing clinical and architecture concepts. This glossary establishes a standard vocabulary to support clear communication and common understanding of terms across Canadian health systems.

Download the Business Glossary (XLSX)

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Business Context Model

Status: Available : Draft Version 1, September 2024

The Business Context Model defines the scope, people, organizations and systems that influence, collaborate, inform and consume the Pan-Canadian Health Data Content Framework.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Use Cases

Status: Available : Draft Version 1, September 2024

Use cases are designed to support the Logical Data Model. These business scenarios provide a link to real-life clinical events in primary health care. Each use case sets the context of pre-existing conditions, defines key actors, outlines their interactions and provides alternative outcomes to the encounter.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Metamodel

Status: Available : Draft Version 1, September 2024

The Metamodel is a high-level model that defines the structure, constraints and relationships within the common data architecture. It establishes the rules, concepts and relationships that govern the creation and interpretation of data models.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Information Model

Status: Available : Draft Version 1, September 2024

The Information Model is a high-level model that establishes subject areas for organizing and showing relationships between the concepts in the Data Content Standard.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Conceptual Data Model

Status: Available : Draft Version 1, September 2024

The Conceptual Data Model is a high-level model that organizes key health and supporting information concepts. This model provides more detail than the Information Model, but it does not include the detailed attributions specified in the Logical Data Model.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Logical Data Model

Status: Available : Draft Version 1, September 2024

The Logical Data Model is a semantically rich, fully attributed model that organizes and standardizes key health concepts and supporting information concepts, as well as describes how they relate to each other and to the real world. It is a foundational component for data storage and data management, including data exchange. The model is designed to support future development while still reflecting current real-world scenarios.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Metadata

Status: Available : Draft Version 1, September 2024

Metadata, also known as “data about data,” is incorporated into each product and describes the characteristics of the data. Metadata improves business and technical understanding of the information being conveyed.

View this product in the Pan-Canadian Health Data Content Framework Community on InfoCentral.

Visit InfoCentral

Feedback Disposition

Status: Available

The Feedback Disposition contains comments received during open reviews of the draft Pan-Canadian Health Data Content Framework. These comments are prioritized for each version, along with actions made and rationales detailed in response to those comments.

Download the Feedback Disposition (XLSX)

Provide your feedback

Get involved

If you have questions about this initiative, would like to be added to our stakeholder notification list or would like to participate in our consultations, please email us.

connectedcare@cihi.ca

Open Review of the Pan-Canadian Health Data Content Framework

Open Review of the Pan-Canadian Health Data Content Framework cyin_master

CIHI continues to invite feedback on products we are developing for Connected Care. This feedback happens through our open reviews.

Feedback received through these open reviews will be considered for subsequent versions of the Pan-Canadian Health Data Content Framework.

Explore this page to learn about the Pan-Canadian Health Data Content Framework, access downloadable content and share your feedback.

  • Data Content Standard (available in French)
  • CACDI (available in French)
  • Business Glossary (available in French)
  • Business Context Model
  • Use Cases
  • Metamodel
  • Information Model
  • Conceptual Data Model
  • Logical Data Model
  • Metadata

The open review period for draft version 1 of the Pan-Canadian Health Data Content Framework ran from October 1 to November 29, 2024. Feedback from that period will be considered for future versions of the Pan-Canadian Health Data Content Framework; however, we continue to welcome additional feedback.

Download the products and provide your feedback

Products of the Pan-Canadian Health Data Content Framework

View and download Pan-Canadian Health Data Content Framework products.

Go to the products page

Pan-Canadian Health Data Content Framework

Learn about products being developed to support the implementation of Connected Care.

Go to the Framework page

Feedback survey

Access the survey to share your feedback

Go to the survey

If you would like a Word version of the feedback form to help you prepare responses before submitting them in the survey form, please email us.

connectedcare@cihi.ca

Contact us

Get involved

If you have questions about this initiative, would like to be added to our stakeholder notification list or would like to participate in our consultations, please email us.

connectedcare@cihi.ca

Terms of Use: www.cihi.ca/en/about-cihi/terms-of-use