An estimated 93,500 Canadians are living with multiple sclerosis (MS) according to the Canadian Community Health Survey. Much is unknown about MS, and Canada is estimated to have one of the highest MS rates in the world.
To further our knowledge of MS, work began on the Canadian Multiple Sclerosis Monitoring System (CMSMS) in April 2011. An extensive network of experts is collaborating on this work. This network includes people living with MS, their caregivers, the Multiple Sclerosis Society of Canada, the Canadian Network of Multiple Sclerosis Clinics, clinicians, researchers, international experts and various governments. Since September 2012, the CMSMS has been ready to receive data.
The CMSMS will
- Record, measure and monitor the evolution and treatment of MS in Canada
- Improve the understanding of disease patterns across Canada, variations in treatment and long-term patient outcomes
- Provide a minimum data set and data standards
- Provide longitudinal data that is pan-Canadian and comparable across jurisdictions
We welcome your feedback and questions
- Contact us at ms@cihi.ca.
Information on multiple sclerosis and the CMSMS
Information for people with MS
Information for people with MS
- It takes a community to build the Canadian MS Monitoring System (May 2012)
- CMSMS Vision (PDF, 489 KB)
- Information for people with MS (2012) (PDF, 2,724 KB)
Reports and analyses
- Multiple Sclerosis and Inpatient Rehabilitation: A Snapshot of Care (Aug. 2005)
- The “Younger” Generation in Ontario Complex Continuing Care (June 2007)
Key resources
- Information for people with MS (booklet) (2012) (PDF, 1,215 KB)
- CMSMS: Information Sheet (Sept. 2012) (PDF, 1,009 KB)
- CMSMS Vision (PDF, 489 KB)
- CMSMS External Field Review Results (July 2012) (PDF, 83 KB)
- CMSMS: Environmental and Technical Scan (2012) (PDF, 1,066 KB)
- Consultation to Determine Priority Information Needs for the Canadian Multiple Sclerosis Monitoring System (2012) (PDF, 375 KB)
- Summary of Feedback From Participating CMSMS Advisory Committee Members and Government Representatives, January 2012 (PDF, 320 KB)
- Privacy Impact Assessment (July 2012) (PDF, 1,445 KB)
- List of Project Advisory Committee Members (Feb. 2012) (PDF, 71 KB)
- Terms of Reference for the Project Advisory Committee (Sept. 2011) (DOCX, 24 KB)
- List of Technical Advisory Committee Members (Feb. 2012) (DOCX, 390 KB)
- Terms of Reference for the Technical Advisory Committee (Sept. 2011) (DOCX, 25 KB)
- CMSMS Resource Manual, Version 2012: Data Dictionary Module (PDF, 996 KB)
- CMSMS Resource Manual, Version 2012: Extract File Submission and Technical Specifications (ASCII and XML) Module (PDF, 2,085 KB)
- CMSMS Resource Manual, Version 2012: Online Data Entry Submission Module (PDF, 1,141 KB)
Metadata
Metadata is information about data. It helps users understand and interpret data from a specific source.
Find out more about CMSMS data:
